I medicated Calliope as usual (for this exacerbation) yesterday but skipped her morning meds since we had an early appointment -- I figured it would be helpful for the pediatrician to see her without any short acting medications in her system.
She was noted to still be wheezing. The doctor is switching her to a high dose steroid for the next month, entirely via nebulizer, and then we can step down the dose a bit after a month if she does well. We are to continue the oral steroids for the full five days. And I'm to do chest physiotherapy after all treatments -- basically, clapping her on the back, sides, and chest, to break up the chest congestion and help it drain towards her stomach.
I've already forgotten to do the chest PT.
I'm disappointed about the nebulizer because it's really hard to get her to sit still for it. At least she's over her initial terror of it.
I have caved on my approach to TV for her -- none -- and am allowing children's programming (through the internet, so no commercials) as it's the only possible way to keep her still. She won't let me fasten the elastic of the mask around her head and gets tired of holding the mask to her face so I have to hold her in my lap to keep it over her mouth.
Tonight she watched Blue's Cl.ues for the first time and seemed to like it, but two respules of Pulmi.cort plus one respule of albuterol was too much for her... just took too darn long. So we didn't finish it. I will keep trying.
I asked the doctor how to know when it's time to call 911, and she said, "if things suddenly change for the worse and nothing you are doing is helping."
So I totally should've called 911.
And now I'm kind of freaked out about how stupid I was to take her out into the cold for a walk to the subway, and then riding the subway, with her feeling so bad.
It's just so hard to get over the idea that 911 is for "real" emergencies. Stupid. This was one.
Hopefully I won't make that mistake again. It would be great if I don't have the opportunity to make that kind of mistake again.
|Blue's Clues PLUS Mommy's lap (to hold the mask for her) PLUS|
pacifier... girl's got it made!
|Until she realized that there was a little hole in the side of the|
nebulizer mask, just big enough to worm her thumb in. And if she
scootches the mask just slightly to the side, she can get that thumb
into her mouth. Ahh.